A global, patient-led effort to measure and improve eczema care around the world
First of its Kind Collaboration Uses Data-Driven Approach to Evaluate and Compare Health Systems in 8 Countries
The Global Patient Initiative to Improve Eczema Care is a patient organization-led effort to measure the performance of health systems in meeting the needs of people with eczema (atopic dermatitis) and their caregivers. The initiative is led by Global Parents for Eczema Research and guided by 10 patient organizations from eight countries. The partnership has produced measures and benchmarks for assessing dimensions of healthcare provision that matter most to patients and policy recommendations for improving care and treatments from the perspective of people who live with eczema.
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Eleven patient organizations from eight countries
The Global Patient Initiative to Improve Eczema Care (GPIIEC) is a first: A global partnership of 11 patient advocacy organizations located in 8 countries and 3 continents.
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A global measure dashboard of patient-centered eczema care
The measure dashboard selected by the GPIIEC includes 7 domains related to the experience of living with eczema and the provision of medical care. Within each domain, the GPIIEC has selected 1-2 measures that will be developed using primary survey data or secondary data sources from each country of interest.
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Findings from a comprehensive literature review
A literature review conducted in 2020 by Global Parents for Eczema Research (GPER) found that across eight developed nations eczema patients and caregivers encounter similar challenges: limited treatment options, barriers to accessing specialists and treatments, and difficulty finding care that integrates their priorities and addresses all areas of need, especially the significant psychosocial burden.
The global initiative is supported with funding from Leo Pharma, a Danish pharmaceutical company that operates under a private foundation owned by the LEO Foundation. Leo Pharma develops and markets products for dermatology.