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    <lastmod>2024-02-06</lastmod>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/blog-post-three-r8t3s</loc>
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    <lastmod>2022-12-02</lastmod>
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      <image:title>Blog - Book Review: The Best Children’s Books About Eczema</image:title>
      <image:caption>The Itchy Kids Club by Gill Grabowski</image:caption>
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      <image:title>Blog - Book Review: The Best Children’s Books About Eczema</image:title>
      <image:caption>“What would help?” I ask when I interview parents to share their eczema stories. One mother answered, “I’d love a book for my six-year-old that wouldn’t make her feel so alone.” Her comment sent me on a search for children’s books about eczema. There are a surprising number. I decided to read the ones I could find on Amazon and provide an honest review. - Kathy Sayers</image:caption>
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      <image:title>Blog - Book Review: The Best Children’s Books About Eczema</image:title>
      <image:caption>I Have Eczema by Jean Greatsinger and Lisa Crosby</image:caption>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/blog-post-four-kelxt</loc>
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      <image:title>Blog - Living at the beach with eczema: Lynsey’s family journey</image:title>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/book-review-allergic</loc>
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    <lastmod>2022-12-02</lastmod>
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      <image:title>Blog - Book Review: “Allergic” - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Blog - Book Review: “Allergic”</image:title>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/blog-post-four</loc>
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    <lastmod>2022-12-02</lastmod>
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      <image:title>Blog - Podcast: New research upends our understanding of the link between eczema and food allergies</image:title>
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  <url>
    <loc>https://cube-flute-ljlk.squarespace.com/blog/blog-post-five</loc>
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    <lastmod>2022-02-07</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/6025b11376d0063ec3a861b7/1629491345447-PHXGNRCEZV89W1NS3JB1/69ba1226-5389-4d86-8513-3f5f82f8344f_1.1e0fa3589672b42605d630d8ff9f9b62.jpg</image:loc>
      <image:title>Blog - Back-to-School Book Review: Eczema Books for School-Aged Kids - Make it stand out</image:title>
      <image:caption>The Case of the Itch and Rash by Erika Kimble</image:caption>
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    <image:image>
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      <image:title>Blog - Back-to-School Book Review: Eczema Books for School-Aged Kids - Make it stand out</image:title>
      <image:caption>Under My Skin by Karen Crow</image:caption>
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      <image:title>Blog - Back-to-School Book Review: Eczema Books for School-Aged Kids</image:title>
      <image:caption>An Itch for Agnes by Elizabeth Ann George</image:caption>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/blog-post-six</loc>
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    <lastmod>2022-12-02</lastmod>
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      <image:title>Blog - A Summer Camp for Kids with Eczema: Sawyer’s Experience - Meet Sawyer Sullivan!</image:title>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/blog-post-seven</loc>
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    <lastmod>2022-12-02</lastmod>
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      <image:title>Blog - Helping Your Child’s Classmates Understand Eczema - Meet Sawyer Sullivan!</image:title>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/blog-post-eight</loc>
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      <image:title>Blog - Fast Read: A 2-minute Summary of our Latest Podcast with Dr. Miriam Santer - Meet Sawyer Sullivan!</image:title>
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      <image:title>Blog - 6 Things I Wish My Family Knew About Eczema - Meet Sawyer Sullivan!</image:title>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/blog-post-ten</loc>
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      <image:title>Blog - Give Skin a Chance: Our First Book Club Book - Meet Sawyer Sullivan!</image:title>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/blog-post-eleven</loc>
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    <lastmod>2022-12-02</lastmod>
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      <image:title>Blog - Living with Severe Eczema and Allergies: Krysia’s Family Journey - Meet Sawyer Sullivan!</image:title>
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    <lastmod>2022-12-02</lastmod>
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      <image:title>Blog - Can Exposing Babies to Sunshine Help Prevent Eczema? - Meet Sawyer Sullivan!</image:title>
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      <image:title>Blog - One Year Later – A Good News Story for Olivia and Jill - Meet Sawyer Sullivan!</image:title>
      <image:caption>We interviewed Jill and Olivia almost a year ago for our newsletter. This is their story and an update on how Dupixent, an eczema drug recently available to young children, changed everything.</image:caption>
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      <image:title>Blog - Hard Water and Eczema. What’s the Correlation? - Meet Sawyer Sullivan!</image:title>
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      <image:title>Blog - Kathie’s Story: Meeting the Challenge of Severe Eczema - Meet Sawyer Sullivan!</image:title>
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      <image:title>Blog - The Remarkable Life of Skin: An Intimate Journey Across Our Largest Organ - Meet Sawyer Sullivan!</image:title>
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      <image:title>Blog - Research Spotlight: The Scoop on Moisturizers - Meet Sawyer Sullivan!</image:title>
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      <image:title>Blog - Choosing a Moisturizer that Helps – and Doesn’t Harm – Your Child’s Skin Barrier - Meet Sawyer Sullivan!</image:title>
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      <image:title>Blog - Are Antibiotics Linked to a Higher Risk of Eczema? - Meet Sawyer Sullivan!</image:title>
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      <image:title>Blog - Lesley’s Story: The Quest for Sleep - Meet Sawyer Sullivan!</image:title>
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      <image:title>Blog - Heat and Fires and Floods.  Oh My! - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Blog - Heat and Fires and Floods.  Oh My! - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Blog - Heat and Fires and Floods.  Oh My! - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <lastmod>2022-11-30</lastmod>
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      <image:title>Blog - How to talk about eczema at school? New book for kids explains how through stories - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <lastmod>2023-03-14</lastmod>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/staph-bacteria-and-eczema-what-is-the-link</loc>
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    <lastmod>2023-03-14</lastmod>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/aad2023</loc>
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    <lastmod>2023-03-27</lastmod>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/eczema-101-triggers</loc>
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    <lastmod>2024-02-06</lastmod>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/eczema-and-pregnancy</loc>
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    <lastmod>2023-06-27</lastmod>
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    <loc>https://cube-flute-ljlk.squarespace.com/blog/newly-diagnosed-with-eczema</loc>
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      <image:title>Blog - First-Day-of-School Books for 5-8 Year Olds - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Blog - First-Day-of-School Books for 5-8 Year Olds - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Blog - First-Day-of-School Books for 5-8 Year Olds - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Blog - First-Day-of-School Books for 5-8 Year Olds - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Blog - First-Day-of-School Books for 5-8 Year Olds - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>GPER - About Us - Founded and led by parents.</image:title>
      <image:caption>Global Parents for Eczema Research (GPER) was formed by two different parents of children with eczema in 2015. Both parents had struggled with finding evidence-based information to guide medical decisions and a lack of safe, long-term treatment options to manage the chronic condition. At that time, there had been no significant new treatments developed for children with eczema in decades. GPER formed around the need for research to support evidence-based medical decision making on behalf of children with eczema and to create more urgency around the need for better treatments. Created for and by parents of children with moderate to severe eczema, GPER is a virtual organization with patient and caregiver members representing five different continents and 17 countries.</image:caption>
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      <image:caption>Collaboration is at the core of our work.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>GPER - Global Scorecard - A global, patient-led effort to measure and improve eczema care around the world</image:title>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>GPER - Global Scorecard</image:title>
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      <image:title>GPER - Caregiver Support - Keri Kelley</image:title>
      <image:caption>I'm a mom of three and our family lives in central OK. My first had mild eczema by his 6-week pediatric appointment. It gradually worsened until it became severe at age 2. We’ve dealt with eczema, asthma and food allergies for over 10 years. The helplessness was overwhelming and feeling like I was the only mom to have walked that road was hard. I was desperate to find someone who could both relate and show me there was light on the other side of the darkness. Our group is a warm place to come and unload some of the weight.</image:caption>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/6025b11376d0063ec3a861b7/1644716383482-4NYWH9U6M6MX2N9SK7HN/Christine+Cutaran.jpg</image:loc>
      <image:title>GPER - Caregiver Support - Christine Pham-Cutaran</image:title>
      <image:caption>Hello, I'm Christine—a mother of two young boys grappling with differing degrees of moderate to severe eczema and food allergies. My journey began with my eldest, diagnosed with severe AD at a mere 2 months old. As a first-time mom, the weight of responsibility to alleviate my son's suffering, coupled with the overwhelming guilt, was profound. I understand the depths of this struggle intimately, and I want you to know that you don't have to navigate it in isolation.</image:caption>
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      <image:title>GPER - Caregiver Support - Korey Capozza</image:title>
      <image:caption>Hi, I'm Korey, mom of an adolescent boy with moderate to severe eczema based in California. I have a decade of experience navigating eczema treatment and management as well as the social and lifestyle issues that come up for parents and families. I'm here to help you find your best solutions for yourself and your child and have special knowledge of the latest science and research on eczema. Looking forward to meeting you!</image:caption>
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    <image:image>
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      <image:title>GPER - Caregiver Support - Ashley Ellis</image:title>
      <image:caption>Hello, I’m Ashley, a mom of 3. My oldest was diagnosed with eczema at 4 months old; it progressed to severe eczema peaking when she was about 2 after having tried everything on the market and more. Luckily in 2019, we found GPER, giving us a community around other eczema parents and kids that provided support and understanding. I’m a pharmacist and have used my education and training to help overcome the barriers many parents and patients face in attaining new eczema therapies like insurance coverage, provider relationships, and prior approvals. I’m passionate about helping other families along this journey now - you are not alone.</image:caption>
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      <image:title>GPER - Caregiver Support - Angela Fox</image:title>
      <image:caption>Hello, I'm Angela. I've been on this eczema journey for over 10 years, as my son was diagnosed as an infant. As a parent of a child with severe eczema, loneliness, desperation, and guilt have been common struggles. For me, finding community has lifted some of the burden of this condition and has shown me that I am not alone. Our group is a welcoming and judgment-free space where you can talk with others who share this journey. I hope some of your burden is lifted too, and you too realize that you are not alone.</image:caption>
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      <image:title>GPER - Caregiver Support - Christina Martin</image:title>
      <image:caption>Hi, my name is Christina and I'm a mom of three. My second-born was diagnosed with severe atopic dermatitis at 5 months old and we've been managing his eczema since. It has been an experience that has touched every single member of our family and an effort we make daily to manage. That first year was a shock to our family unit, but with support, education, and care our family has adjusted. Some days are very hard, some days we have big wins, and some days, everything in between. Thinking back on the fear, anxiety, and loneliness we felt in that first year has been a strong motivator to make myself available to support other families managing the challenges of childhood eczema. I'm happy to be a part of your family's support system.</image:caption>
    </image:image>
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      <image:title>GPER - Caregiver Support - Gaby Morales</image:title>
      <image:caption>Hi, I'm Gaby from Venezuela. I married my college sweetheart in 2006 and later moved to the USA for work. When my daughter had really bad eczema at 2 years old, we felt alone and scared. Witnessing her struggle, I navigated a path of isolation until I discovered a compassionate community of like-minded parents who understood our journey (GPER), and it made a huge difference. Now, I'm all about helping families dealing with eczema, offering support and understanding. I know how hard it can be, and I want to make sure others don't feel alone like we did. It's rewarding to give back and be a part of a friendly, non-judgmental, and caring community.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Caregiver Support (Copy) - Keri Kelley (Copy)</image:title>
      <image:caption>I'm mom to three kiddos and our family lives in central OK. My first was born in 2012 and had mild eczema by his 6 week pediatric appointment. It gradually worsened until it became severe at age 2. The helplessness was overwhelming and feeling like I was the only mom to have walked that road was hard. I was desperate to find someone who could both relate and show me there was light on the other side of the darkness. Our group is a warm place to come and unload some of the weight.</image:caption>
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      <image:title>Caregiver Support (Copy) - Christine Pham-Cutaran (Copy)</image:title>
      <image:caption>Hello, I’m Christine. I have two young boys with varying degrees of moderate to severe eczema. My oldest son, who is now 7 years old, was diagnosed at 2 months old with severe AD. As a first time mom, the amount of pressure to help my son and the guilt I felt was immeasurable. It’s a dark place to be, and as someone who can relate to what you may be going through, you don’t need to go through it alone.</image:caption>
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      <image:title>Caregiver Support (Copy) - Korey Capozza (Copy)</image:title>
      <image:caption>Hi, I'm Korey, mom of an adolescent boy with moderate to severe eczema based in California. I have a decade of experience navigating eczema treatment and management as well as the social and lifestyle issues that come up for parents and families. I'm here to help you find your best solutions for yourself and your child and have special knowledge of the latest science and research on eczema. Looking forward to meeting you!</image:caption>
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    <image:image>
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      <image:title>Caregiver Support (Copy) - Ashley Ellis (Copy)</image:title>
      <image:caption>Ashley Ellis is a mom of 3, Hadley (11), John Ross (9) and Anders (4). Hadley was diagnosed with eczema when she was 4 months old which progressed to severe eczema peaking when she was about 2 and having tried everything on the market and more. Luckily in 2019, Hadley and Ashley found a community around other eczema parents and kids with support and understanding. Ashley is a pharmacist in her professional life and has had to use this training to help overcome the barriers many parents and patients face in attaining new eczema therapies like insurance coverage, provider relationships and prior approvals. She is passionate about helping other families along this journey know - they are not alone.</image:caption>
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      <image:title>Caregiver Support (Copy) - Angela Fox (Copy)</image:title>
      <image:caption>Hi, I'm Angela. We've been on this eczema journey for almost 9 years now, as our son was diagnosed as an infant. As a parent of a child with severe eczema, loneliness, desperation, and guilt have been common struggles. For me, talking with others who have shared this journey has lifted some of the burden of this condition. Our group is a welcoming and judgement-free space where you can do the same.</image:caption>
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    <image:image>
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      <image:title>Caregiver Support (Copy) - Jill Harrison (Copy)</image:title>
      <image:caption>Hi, I’m Jill. I have been facing the challenges of parenting an eczema child since 2012. My eldest daughter has had mild eczema since she was 18 months old, and my youngest daughter has had moderate to severe eczema since she was just a few weeks old (born in 2016). The anguish of watching my little ones suffer and the isolation it caused have been driving forces in my desire to reach out to other parents. No one should have to go through it alone. I would love to be able to offer you my empathy and support.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Caregiver Support (Copy) - Christina Martin (Copy)</image:title>
      <image:caption>Hi, my name is Christina and I'm a mom of three. My second-born, three-year-old son was diagnosed with severe atopic dermatitis at 5 months old and we've been managing his eczema ever since. It has been an experience that has touched every single member of our family and an effort we make daily to manage. That first year was a shock to our family unit, but with support, education, and care our family has adjusted. Some days are very hard, some days we have big wins, and everything in between. Thinking back on the fear, anxiety, and loneliness we felt in that first year has been a strong motivator to make myself available to support other families managing the challenges of childhood eczema. I'm happy to be a part of your family's support system.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Caregiver Support (Copy) - Carol Moxham (Copy)</image:title>
      <image:caption>Hi my name is Carol I’m a U.K. mum living in Cornwall. Eczema is a major part of my life with multiple children effected at various times from birth to teens. My children tell me I’m old, I want to be fitter but I’m rich in hugs! With 7 children that’s a lot of hugs but life can be a bit of a whirlwind! Living with eczema is an added challenge it’s thrown us various curve balls and we have learnt a great deal about living and managing eczema. I’m a pretty outgoing mum, I’ve forgotten all the things I enjoy outside of children! If I think hard it would be theatre, arts, running, outdoors and nature… I use to love travelling but that seems like a distant memory! I have been part of GPERs coaching program for a couple of years. I find it rewarding to give back to this community and support struggling parents and care givers. To connect with others who completely understand, non judgemental, supportive and friendly is hugely valuable. Sometimes we just all need a little bit of help, guidance and kindness that’s what I see as my role.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Caregiver Support (Copy) - Gaby Morales (Copy)</image:title>
      <image:caption>I am originally from Venezuela. I have a Bachelor’s Degree in Chemical Engineering. I married my college sweetheart in 2006. In 2012, I was transferred to USA because of my job. I am a working wife and mom to my 9 year old daughter and 12 year old son. My daughter was diagnosed with severe eczema when she was 2 years old. I saw her suffering and felt so lonely during our journey through eczema-until I found a community of parents that were going through the same. I want all the parents out there going through this situation to feel safe and understood. I am an advocate for eczema suffers.</image:caption>
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      <image:title>Caregiver Support (Copy) - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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